Creating a Culture of Support for Home Dialysis

Clinical champions for home dialysis have made critical differences in the uptake of home therapy in various countries.1 Nurses, in particular, are crucial in the administration of and training for home dialysis and they have a unique active connection to dialysis patients, with whom they often have more personalized conversations than physicians.2 3 Although the kidney disease community can benefit from identifying and promoting additional strong clinical leaders to educate the public and policymakers about home dialysis, clinician advocates are not present in every region or health system. 4

Take-Action Resources 

Article: Home haemodialysis: Providing opportunities to reimagine haemodialysis care

An article outlining opportunities for reimagining haemodialysis care, including current situations, opportunities, controversies, and challenges, as well as an outlook for home haemodialysis. https://pubmed.ncbi.nlm.nih.gov/33910700/

Online Courses

Online access to the International Society of Nephrology’s online course academy. Includes courses on the Introduction to Qualitative Health Research, Online Kidney Education for Primary Care Physicians, Kidney Stone Courses, and the Hybrid Fellowship Course. https://www.theisn.org/in-action/education/online-courses/

Article: The cost of starting and maintaining a large home hemodialysis program

This article is about a 2-year retrospective study about the cost of starting and maintaing a large sized home hemodialysis program . https://www.sciencedirect.com/science/article/pii/S0085253815541653

Article: Best Practices Consensus Protocol for Peritoneal Dialysis Catheter Placement by Interventional Radiologists

An article that analyzes best practices for peritoneal dialysis catheter placement, specifically by interventional radiologists. Due to recent publications, the article emphasizes that interventional radiologists will be needed more than at present for catheter placement. https://journals.sagepub.com/doi/10.3747/pdi.2013.00029

Article: Home hemodialysis education during postdoctoral training: Challenges and innovations

An article focusing on the opportunities available for training and the education needed for home hemodialysis during postdoctoral fellowships. https://onlinelibrary.wiley.com/doi/10.1111/sdi.12673

Article: Workforce development and models of care in home hemodialysis

An article detailing what type of workforce is needed to set up a home dialysis program. Specifically, the article examines minimum staff needed, additional workforce, and how care models are implemented in a program. https://onlinelibrary.wiley.com/doi/10.1111/hdi.12291

Article: Technology, Telehealth, and Nephrology: The Time Is Now:

An article about the interconnection of technology and telehealth in the nephrology community. https://journals.lww.com/Kidney360/pages/default.aspx

Article: Attitudes of nephrologists towards assisted home dialysis in Germany

An article examining a survey that was designed to identify barriers to assisted home dialysis, as well as reactions from nephrologists regarding assisted home dialysis policies and examples in Germany. https://academic.oup.com/ckj/article/11/3/400/4616521

Article: Home Dialysis in the Coronavirus Disease 2019 Era

An article about the effects of the COVID-19 pandemic on hemodialysis and home dialysis. The article examines data regarding advantages to home dialysis, as well as looking at telehealth and remote monitoring technologies. https://www.sciencedirect.com/science/article/pii/S1548559520301117

Article: Dialysis: A Review of the Mechanisms Underlying Complications in the Management of Chronic Renal Failure

An article about chronic renal failure that examines underlying complications and management review. https://www.cureus.com/articles/8233-dialysis-a-review-of-the-mechanisms-underlyingcomplications-in-the-management-of-chronic-renal-failure

Article: Economic Benefits of Increased Home Dialysis Utilization and Innovation By Alex Brill

An article about the economic benefits of increased home dialysis utilization and innovation. The piece also examines the underutilization of home dialyisis modalities in the United States. https://homedialysis.org/documents/spotlight/mga_home_dialysis_paper_for_release.pdf

Understanding your Home Hemodialysis Options

A book created by the American Association of Kidney Patients to provide patients with information on home hemodialysis methods. https://aakp.org/wp-content/uploads/2018/04/HomeHemodialysis_Brochure_LowRes-1.pdf

Kidney Beginnings: A Guide to Living with Reduced Kidney Function

A book created by the American Association of Kidney Patients to provide patients with the information they need to take control of their health care options and kidney function. https://aakp.org/product/download-kidney-beginnings-patients-guide-living-reduced-kidney-function/

Article: “Should More Patients with Kidney Failure Bring Treatment Home? What We Have Learned from COVID-19”, Authors: Xueqing Yua, Vivekanand Jha, Hidetomo Nakamotoe

An article focused on the benefits to peritoneal dialysis in the Asia Pacific region during the COVID-19 pandemic, as compared to other dialysis modalities. The article emphasizes that PD should be prioritized and maintained in a post-pandemic future. https://www.karger.com/Article/Pdf/525046

The ISN Academy

Online access to the International Society of Nephrology’s “The Academy” focuses on kidney health educational resources for global impact. https://academy.theisn.org/

ISN advocacy letter

The International Society of Nephrology’s Advocacy Newsletter, “Bridging the Gaps,” is published online and viewable here. https://www.theisn.org/in-action/advocacy/advocacy-activities/advocacy-newsletter-bridging-the-gaps/

Database of Peritoneal Dialysis: Web based program for PD units voluntarily register data of PD cases

A web based program for peritoneal dialysis units that voluntarily registered data of PD cases. The resource was created as a tool to monitor and evaluate clinical outcomes, and as a tool to design and perform quality improvement projects. https://dpexthailand.org/index.php

ISN Patient Education Webinars

Online access to the International Society of Nephrology’s live and recorded webinars in several languages on a broad swath of nephrology topics. https://www.theisn.org/in-action/education/webinars/

“Development of an online patient decision aid for kidney failure treatment modality decisions”

An article about creating an online tool that would help clinicians and patients to support kidney failure treatment modality decision making. https://bmcnephrol.biomedcentral.com/articles/10.1186/s12882-022-02853-0

Approved article: PD paper

An article focusing on access to peritoneal dialysis and discussing peritoneal dialysis catheter insertion techniques, barriers impacting the procedure, the pandemic’s effect, and possible policy solutions. https://academic.oup.com/ckj/article/15/12/2177/6584865

Article: Fighting the unbearable lightness of neglecting kidney health: the decade of the kidney

An editorial published in the Clinical Kidney Journal about comprehensive elements constituting the burden of kidney disease, intended for advocacy to reduce said burden. https://pubmed.ncbi.nlm.nih.gov/34221379/

EKHA Webinar: Getting EU Health Systems to Be Home Centric

A webinar created to encourage home dialysis in EU health systems

Input by the European Kidney Health Alliance (EKHA) to the expert panel on effective ways of investing in health (in the aftermath of the first COVID-19 wave)

An article created “to create awareness that COVID-19 also affects kidney patients, that kidney patients are even amongst the most affected risk groups and that a current shift of therapeutic paradigm could help preventing a number of those problems.” https://ekha.eu/wp-content/uploads/2021/11/20020-09_EKHA_input_sustainable_health_DEF.pdf

EKHA 2021 Forum: Unmet Needs and Challenges in Access to Treatment in Europe

A video recording of the European Kidney Health Alliance’s 2021 Forum. https://www.youtube.com/watch?v=XOq4OuPsxKY

Baxter HD Circuit

A guide to the Baxter hemodilaysis circuit.

Instructions for using the red dialysate wand

Instructions created for using the red dialysate wand following adaptaption for use of Baxter Dialysate.

Ultrafiltration Removal Exercise Sheet

An ultrafiltration removal exercise sheet.

HaemodialysisTrouble Shooting Flip Chart

Created by the Southern District Health Board, this resource is a troubleshooting flip chart for haemodialysis.

Home Heomodialysis Training 2 week Assessment Point

A worksheet that is used as an assessment point for home hemodialysis training.

CAPD Handbook and Troubleshooting Guide

A handbook and troubleshooting guide for continuous ambulatory peritoneal dialysis.

Oral Abstract Session: “Dialysis: Patient-Centered Interventions and Outcomes”

An oral abstract on the patient centered interventions and outcomes with dialysis.

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  1. Fortnum D., Ludlow M. Improving the uptake of home dialysis in Australia and New Zealand. Renal Soc Australasia J. 2014; 10: 75-80.[]
  2. Shahdadi H., Rahnama M., Experience of nurses in hemodialysis care: a phenomenological study. J Clin Med. 2018; 7:30.[]
  3. Ahmad M., Wallace E., Jain G. Setting up and expanding a home dialysis program: is there a recipe for success? Kidney360. 2020; 1: 569-579.[]
  4. Mitra S., Cress C., Goovaerts T. Workforce development and models of care in home hemodialysis. Hemodial Int. 2015; 19: S43-S51.[]